Christmas is like a game of two halves where kids are concerned, on one side you have all the excitement, happiness that goes hand in hand with waiting for Santa and the gifts they are about to receive, and the other side is the time off school and the living in each others and family members pockets for two weeks.Read More »
Before Noah was diagnosed we were told there was a chance he had one of two rare syndromes.
One of which was life limiting and the other which was Escobar Syndrome.
Now it was a very strange moment because and this might sound weird to some of you, but we were delighted it was Escobar Syndrome because it meant that Noah would have a chance at a relatively normal life.
He would develop as normal mentally and should live a normal life expectancy.
And not only that we could also pretend that the syndrome was named after an infamous drug lord (its not by the way).
Now that I think about it Noah has been mad to grow a moustache lately mmmmm…??
Mr EscobarRead More »
We are down to the last 3 weeks before Christmas, and for some of us the panic is probably starting to set in as to what presents we need to get for our nearest and dearest.Read More »
I wanted to do up this blog post to explain a recent Facebook post I did in relation to the abuse of disabled parking bays.
Since Noah has been born and we realised how seriously physically effected he was I knew that disabled parking bays were something we were going to need very early on.Read More »