It’s August, the end of the summer holidays is nigh, and while most of us seasoned parents can’t wait for school to start-up again, for those first time parents of school going kids it’s a scary new world.
The other day I decided to do up a post on our Instagram and Facebook pages, about the importance of teaching your children about kids with disabilities before they start school.
I can’t believe that it has been nearly a year already since we took the plunge and brought Noah on a family ski holiday.
Skiing has been an annual holiday with Denis (the master builder) and his family with the last 17 years and other than missing the odd year since the kids arrived Denis has gone himself the majority of those.Read More »
Before Noah was diagnosed we were told there was a chance he had one of two rare syndromes.
One of which was life limiting and the other which was Escobar Syndrome.
Now it was a very strange moment because and this might sound weird to some of you, but we were delighted it was Escobar Syndrome because it meant that Noah would have a chance at a relatively normal life.
He would develop as normal mentally and should live a normal life expectancy.
And not only that we could also pretend that the syndrome was named after an infamous drug lord (its not by the way).
Now that I think about it Noah has been mad to grow a moustache lately mmmmm…??