How to prepare for a hospital stay with your child.

Since Noah’s arrival, for a time hospitals became like a second home for us.

Between out patient, scheduled and emergency in-patient stays I actually nearly became nose blind to the smell of the place, which to be honest I thought would be nearly impossible.

At the beginning I was such a novice when it came to hospitals, the workings of them and what would make a stay in them somewhat more comfortable, I thought a blog might be helpful to those who might not have as much experience as us in hospitals.

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Whats Rare is Wonderful Right?

Before Noah was diagnosed we were told there was a chance he had one of two rare syndromes.

One of which was life limiting and the other which was Escobar Syndrome.

Now it was a very strange moment because and this might sound weird to some of you, but we were delighted it was Escobar Syndrome because it meant that Noah would have a chance at a relatively normal life.

He would develop as normal mentally and should live a normal life expectancy.

And not only that we could also pretend that the syndrome was named after an infamous drug lord (its not by the way).
Now that I think about it Noah has been mad to grow a moustache lately mmmmm…??

Mr EscobarRead More »